Over 130 attended a Patient-Centered Outcomes Research Institute webinar on July 19 featuring Drs. Giana Davidson and Nathan Shapiro discussing stakeholder engagement in the CODA study.
As patients are increasingly becoming active partners in research to ensure that studies focus on the outcomes important to them, more tools and resources are needed to support successful collaborative efforts between patients and researchers. This is why CERTAIN created the INSPIRE Research Portal.
We are pleased to introduce one of four colorectal surgeons at UW Medicine, Erin Lange, MD, who practices at Northwest Hospital & Medical Center and is part of the UW Medicine Colorectal Surgery team.
Engaging stakeholders is a core part of our CODA study. It provides an opportunity to keep stakeholders informed of our progress, get input on study related issues as needed, and understand how to best present this evidence to effectively inform decision-making.
CODA study development was directly informed by our Patient Advisory Group. This group helped to shape public outreach and find out whether people would be willing to be randomized into treatment groups. They also edited and developed patient outreach and education materials and helped to shape inclusion and exclusion criteria that were included in the funding application.
Since launching the CODA study just over a year ago:
1,076 patients have been screened
Approximately 1/3 of eligible patients enrolled in the randomized cohort
CERTAIN surgeons and projects will be prominent in a new exhibit at the Pacific Science Center in Seattle.
Skagit Regional Health—the umbrella name for Skagit Valley Hospital, Skagit Regional Clinics, and Cascade Valley Hospital and Clinics—launched the DEBUT study at their sites in December 2016. The DEBUT study grew out of a collaboration with the Surgical Care and Outcome Assessment Program (SCOAP), which Skagit Regional Health has participated in for many years. After DEBUT investigators Drs.
Congratulations to CERTAIN investigator Danielle Lavallee, PharmD, PhD, who recently received a Patient-Centered Outcomes Research Institute (PCORI) Engagement Award to support her project, “Using Patient-Generated Health Data to Transform Healthcare.” This PCORI award will provide funding for two years, beginning on April 1st, with a total award amount of $249,843.
The CERTAIN Patient Advisory Network is proud to launch our new web portal, InspireResearch.org.
Phillip Dean, MD, is a surgeon site lead for the DEBUT study at Valley Medical Center. As a practicing colorectal surgeon for 25 years, he has watched how recommendations for when to have elective surgery for diverticulitis seemed to swing back and forth without a lot of good data.
“I tried to keep track and give patients the best information I could, but up to this point there hasn’t been a lot of good information as to when to have the surgery,” he says.