Aortic Dissection Collaborative for Patient-Centered Research

Patients with aortic dissection face dramatically different options for care without strong evidence for the long-term consequences of those options at an individual level. What is absent in the decision-making process in this complex landscape is the patient’s voice. Providing opportunities for patient involvement will help ensure the patient voice is well represented in research related to aortic dissection. 

The Aortic Dissection Collaborative is currently gathering perspectives of those affected by aortic dissection, and we need your help! 

We want to hear from people who have been diagnosed with aortic dissection. Take our survey and share your experiences with aortic dissection. The survey responses will help us understand what the community needs in terms of research, education, and support in dealing with aortic dissection.  
 
 

 

Hear from Aortic Dissection Collaborative Advisory Group members on why the Collaborative and this survey is important: