Aortic Dissection Information and Resources

Are you aware of a resource not included here? Let us know, by emailing aorticdissection@uw.edu.

Please note: The Aortic Dissection Collaborative does not monitor the content of these resources and cannot vouch for the accuracy of all information posted. 

Social Media Resources for Support and Information 

• Abdominal Aortic Aneurysm Network (Facebook Group)
• Aortic Aneurysm Awareness Network (Facebook Group)
• Aortic Dissection Support Group (Facebook Group)
• Resource Toolbox for Patients and Families Affected by Aortic Disease (LinkedIn Post)
• Survivors of Aortic Dissection (Facebook Group)

Educational Materials

• Disease Maps
• E-brochure: Patient Information: Aorta Diseases, Diagnosis, and Therapy
• Vascupedia

Organizations for Advocacy, Awareness, and Connection to Others*

• Aortic Dissection Awareness UK & Ireland
• Aortic Hope
• Aortic Warriors
• Ehlers-Danlos Society
• Genetic Aortic Disorders Association (GADA) Canada
• John Ritter Foundation for Aortic Health
• Loeys-Dietz Syndrome Foundation
• The Aortic Dissection Charitable Trust
• The Marfan Foundation
• The VEDS Movement
• Think Aorta Campaign
• RareConnect

*Many of these organizations offer educational materials in addition to those listed above.

Research Organizations

• GenTAC Alliance
• International Registry of Acute Aortic Dissection (IRAD)
• Montalcino Aortic Consortium
• Vascular Low Frequency Disease Consortium
• Vascular Surgery COVID-19 Collaborative (VASCC)
• VEDS Collaborative

Aortic Dissection Collaborative Publications

• Seminars in Vascular Surgery, March 2022 edition: "Experiences Engaging Stakeholders in Setting Research Priorities in Aortic Dissection" (11 articles, all publicly available)