Aortic Dissection Information and Resources

Are you aware of a resource not included here? Let us know, by emailing aorticdissection@uw.edu.

Please note: The Aortic Dissection Collaborative does not monitor the content of these resources and cannot vouch for the accuracy of all information posted. 

Social Media Pages, Groups, and Posts

• Abdominal Aortic Aneurysm Network (Facebook Group)
• Aortic Aneurysm Awareness Network (Facebook Group)
• Aortic Dissection Support Group (Facebook Group)
• Resource Toolbox for Patients and Families Affected by Aortic Disease (LinkedIn Post)
• Survivors of Aortic Dissection (Facebook Group)

Websites

• Aortic Hope
• Disease Maps
• E-brochure: Patient Information: Aorta Diseases, Diagnosis, and Therapy
• RareConnect
• Think Aorta Campaign
• Vascupedia

Advocacy and Awareness Organizations 

• Aortic Warriors
• Ehlers-Danlos Society
• Marfan Foundation

Research Organizations

• GenTAC Alliance
• International Registry of Acute Aortic Dissection (IRAD)
• The John Ritter Foundation for Aortic Health
• The Montalcino Aortic Consortium

Recent Publications by Collaborative Investigators

• Shalhub S, Roman MJ, Eagle KA, LeMaire SA, Zhang Q, Evangelista A, Milewicz DM; Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC) Consortium. Type B Aortic Dissection in Young Individuals With Confirmed and Presumed Heritable Thoracic Aortic Disease. Ann Thorac Surg. 2019 Jul 31. PMID: 3137637
• Shalhub S, Regalado ES, Guo DC, Milewicz DM; Montalcino Aortic Consortium. The natural history of type B aortic dissection in patients with PRKG1 mutation c.530G>A (p.Arg177Gln). J Vasc Surg. 2019 Sep;70(3):718-723. PMID: 30871887
• Taylor AP, Freeman RV, Bartek MA, Shalhub S. Left ventricular hypertrophy is a possible biomarker for early mortality after type B aortic dissection. J Vasc Surg. 2019 Jun;69(6):1710-1718. PMID: 30552040
• Shalhub S, Schäfer M, Hatsukami TS, Sweet MP, Reynolds JJ, Bolster FA, Shin SH, Reece TB, Singh N, Starnes BW, Jazaeri O. Association of variant arch anatomy with type B aortic dissection and hemodynamic mechanisms. J Vasc Surg. 2018 Dec;68(6):1640-1648. PMID: 29804742